Before I continue my story on how I met my husband, I'd like to take (another) hiatus to discuss something. This "something" influences me deeply and is connected, in some way (albeit not happily) to my identity. This something has also been used by God to bring me where I am right now, with my husband.
First, a digression. There can often be an unspoken expectation that people in a Church are meant to be molded a certain way-and if you fall outside of bell curve for this “normalcy” you’re considered weird and ostracized at worst, or at best- very lonely. I hope my story can help some who feel this way feel a little less lonely. And further, I would expect that many others actually feel exactly this way, even those who put on the best shows of “normalcy.”
My Something:
First, a digression. There can often be an unspoken expectation that people in a Church are meant to be molded a certain way-and if you fall outside of bell curve for this “normalcy” you’re considered weird and ostracized at worst, or at best- very lonely. I hope my story can help some who feel this way feel a little less lonely. And further, I would expect that many others actually feel exactly this way, even those who put on the best shows of “normalcy.”
My Something:
I have asperers. There, I said it. In a two-fold world which
is chaotically rampant with diagnoses, issues and problems too often diagnosed
and too infrequently really treated, a world where it can be very socially
dangerous to claim any sort of “disorder” here I am making such a claim. Once
you’ve been labeled, people are often unable to see you in any context outside
of this association. Suddenly the disorder becomes the lens through which
everyone else sees you, your identity. This can be helpful- people will be more
considerate and empathetic. This can also be obstructive…people may always see
you this way and none other. Think about
it…you find out someone has schizophrenia or PTSD or severe anxiety…suddenly
they are “That person.” The one you either avoid, watch from a distance with
subtle curiosity, or overwhelmingly try to befriend and console for their poor
sad predicament. In a Christian
environment it can oft be even more difficult to cope with labels, especially
psychological ones… some Christians will simply deny they even exist! Others
will insist that your only obstacle in life isn’t a disorder, but solely sin.
While I am against using disorders to explain away every inept behavior…surely
sin could be a reason for (rather than a reason against) the existence of such
issues? It’s an imperfect world. There will be trouble. We can take heart that
Christ has overcome this world. Likewise, we need to be realistic… we aren’t
there yet. We will continue to
struggle in our own ways. And for some of us, these issues aren’t ones which
can be solved at all on this side of heaven.
Social
Aspergers… It’s mostly social, to be honest. For one, there
is a huge discrepancy between my understanding of myself and how I am perceived
by others. I suppose this can be true for most people, but allow me to explain.
When I was a young child, I enjoyed playing alone. Up until the age of 10 I
remember playing at recess (alone) pretending to be animals or fictional
characters, and played out different scenarios with myself. When I came home
from school I would play often play alone continuing these same scenarios,
escaping into a magical world of my mental creation. Except I wasn’t “escaping”
There wasn’t anything about the present world I disliked…I simply enjoyed
creatively conjuring up these imaginary worlds more than playing with others.
So I did so.
When I did interact with others, I remember being fairly
clueless about what was the norm. I followed rules religiously, but was often
very aloof in class. It wasn’t until my teen years that I actually looked back
on when I was a child and felt truly embarrassed. Embarassed for being a 10
year old still playing alone, pretending to be animals. Embarassed that I didn’t
have friends. Embarassed that I never knew people thought I was weird, because it
had just never occurred to me. I went from being completely unaware of what
people thought of me to overthinking what people must think of me.
Obsessions
Another thing about people with asperger’s…they tend to
become really focused on specific things and nearly “obsess” over these things
for a period of time. I believe these are often coping mechanisms…things which
we do to calm and focus us. When I was
younger, these obsessions were manifested in my imaginary world. As I hit my
teen years and went into university (and even yet to this day) these obsessions
became studying. At this time I began to religiously study theology. I would
pick different topics, study them intensely for months (or years) until I
understand each side of a debate. To this day I still do the same.
Next topic regarding aspergers: social awkwardness!
People who have aspergers obviously have issues with social awkwardness.
For many, it can be difficult to make eye contact, hold personal/subjective
conversations, and read body language. I can attest that all of these are true.
It doesn’t mean a person can never
engage in these things- but the basics have to be learned. Thus, while I was in
university one of my topics of “obsession” became people. One of my
concentrations was psychology. I actually planned on being a counselor. While
this may sound shocking for someone with a social “disorder” it’s actually
logical, if you consider it. Psychology is enveloped in the study of people. In
order for me to interact, I had to study people. I reckon that most of what I
learned socially, I learned in this context. I learned how to read body
language. I learned how to converse, how to manipulate a conversation, how to
influence mood through tone, intonation, and rhythm. I began to practice these things, and found
myself having a lot of friends for the first time in my life. However, it
became very overwhelming for me and I eventually had to cut it down to
maintaining only a few friendships. For me, it was like I was acting 24/7. I am
certainly introverted, which means I expend more energy with people than alone.
Extend even further since whenever I am with people I am “making myself into
someone” that I’m really not. Forcing myself to behave in ways I have observed
to be socially acceptable…but which don’t’ necessarily always come naturally to
me.
Fast forward… I graduated, finished my degree, and was
preparing to consider going into ministry of some sort. Unfortunately, my desires
and expectations for ministry quickly came to a hault after an experience which
disheartened me enough to believe I would never be cut out for ministry. Long
story short- I was involved in a church where I was expected to fulfill certain
obligations (per my agreement), but desperately failed to meet their
expectations.
Knowing what to expect
Another thing about aspergers- we thrive on
rules/expectations. For someone with my perspective on life, it’s very
important to know exactly what I am
meant to do. I thrive on rules and direction. I thrive on knowing what is
expected. Even now, in my job, when I am asked to do something, I make sure I
ask a lot of questions to ensure I understand precisely what is desired, so I am sure not to misunderstand.
Unfortunately there was not a lot of direction. I, and the
others working with me, were told what we needed to do most certainly. However,
we were not told the specifics of what we must do. I remember being scolded a
few times for not doing things a certain way- even though these specifics were
not clarified in the beginning. This may not seem like such a big deal, it’s
receiving correction, isn’t it? I think, for people with asperger’s,
constructive criticism can be interpreted in one of two ways.
1.
It is someone showing appreciation for your
effort, but asking if a few things could be changed next time, specifically
showing details of what they want in the future.
2.
It is someone sharing their disappointment in
you completely failing to do what they wished, as though you had expelled no
effort at all. You failed. Utterly.
Detest heavy social interactionAnd yet another tidbit about aspergers- we detest spontaneous heavy social interaction. I think the biggest fear of an individual with aspergers would be dropping them in the middle of a social situation with no foresight of what to expect. One of the expectations in this ministry was that I would heavily involve myself socially with members and attenders. I probably should have had the foresight to realize this may happen, but I didn’t. In social conversations which involve small talk, I can usually last only a few minutes before I’m very anxious and exhausted. This may seem silly to on-lookers and readers…but think of it this way. Say you’re computer illiterate and suddenly your church throws you into a situation where you are expected to program a computer. You have the beginner’s guide to programming, but you are expected to create a new software program and you must do it NOW!
Back to my story: I was going through this period in ministry
knowing full well that I wasn’t getting everthing right. I knew, by this point,
that I wasn’t ever going to be one of the chatty church ladies who stays after
church for 2 hours every Sunday, having a short conversation with everyone, and
anticipating all needs. However, I was also proud of myself- I was really trying to be different. I was
trying to be more involved, more social, trying to maintain friends, trying to
reach out to people. I was reading my
bible every night, praying, I felt devoted to God, I wanted to be devoted to
God, and I truly believed my experience was edifying for me both spiritually
and socially.
And here is where the discrepancy lies once again. Remember
I said people with asperger’s often have trouble with knowing whether
self-perception is equivalent to how they are perceived?
Well, although I truly believed myself to be making progress
(especially when you look back at my life!) I was essentially told that I
should not have been involved in this ministry from the get-go, that the way I
was as a person failed to be conducive to ministry. These things were said (For
the most part) with grace and kindness…but said nonetheless. My world, at this
point, shattered.
They probably saw:
1. 1. Someone who did not seem to make effort in
building relationships with people
2. 2. Someone who did not involve herself in every
ministry she could have
3. 3. Someone who seemed disinterested in the church
and its ministry
4. 4. Someone who seemed to take for granted the
privilege of serving in this ministry.
What I felt before this occurrence:
1. 1. I was progressing in making friendships last. I
had a few friends at the church who were my age, and I was feeling more
comfortable making small talk after church services.
2. 2. I was involved in some ministries, but not all.
For me this was a huge step- I need a lot of time alone to re-energize after I’ve
had even minimal social interaction, since it would completely exhaust me.
3. 3. I felt, for the first time in years, in love with
the church and its ministries.
4. 4. I was excited for the short time I had served in this ministry, excited
by the my personal progression, and hoped I would be able to stay so I could
progress even more.
What I felt after this occurrence:
1. 1. Failure
2. 2. Failure
3. 3. Failure
4. 4. Failure
So where does this leave me now? Well I’m not a counselor, I’m
a librarian and archivist (and I love it!). I enjoy making resources, I enjoy
learning, and I enjoy sharing what I learn with others. (I’m fantastic with
conversation about objective things, it’s the subjective conversation that
kills me!).
What about socially and spiritually? Still progressing, I
hope. I reckon part of this journey, for someone in my predicament, is to realize
I should only care about what God’s perception is- no one else’s Not even the church’s. And how can I know
God’s perception? His promises.
However, scripture is clear we do need the church and need
fellowship of others to continue this journey most effectively. I would sincerely hope that people in churches
would consider this- just because someone doesn’t meet the “norms” in a church, does
not at all mean they cannot be useful. Being in ministry does not require being
a certain “social personality.”
My husband has found ways
to encourage me in ministry. I use my love of intellectual studies and research
to pass this information onto others in the church by creating resources (such
as brochures on various topics I have studied). I use my love of organization
and books to arrange the church library.
The end?
I’ve been sitting here for about 20 minutes trying to
decide how I should end this short account. This story doesn’t end with me
becoming very social once again, feeling comfortable in church, and feeling
close to God as ever, unfortunately. It doesn’t even end with me embracing who
I am and feeling comfortable in my own skin. Perhaps this is the best way to
end it- awkwardly and incomplete. This is how I often feel, and how life,
generally, is often lived. It’s not meant to be complete yet. There is a hope to
come, of course. Already, but not yet.


